Inverting the patient involvement paradigm: defining patient led research

Patient involvement in research – participants or collaborators?

Patient and Family Member-Led Research in the Intensive Care Unit: A Novel Approach to Patient-Centered Research

INTRODUCTION Engaging patients and family members as partners in research increases the relevance of study results and enhances patient-centered care; how to best engage patients and families in research is unknown. METHODS We tested a novel research approach that engages and trains patients and family members as researchers to see if we could understand and describe the experiences of patien...

Defining Patient Experience

In recent years, perceptions of performance and quality of healthcare organizations have begun to move beyond examining the provision of excellent clinical care, alone, and to consider and embrace the patient experience as an important indicator. There is a need to determine the extent to which clear and formal definitions exist, have common overarching themes, and/or have unique, but important...

Patient and public involvement in patient safety research: a workshop to review patient information, minimise psychological risk and inform research

PLAIN ENGLISH SUMMARY Patient safety is a growing research area. However, although patients and the public are increasingly involved in clinical research, there is little guidance on how best to involve patients in patient safety research. Here we focus on how patients can contribute to the design of patient safety research. We conducted a workshop with patients as part of a project exploring e...

Redefining the Patient Record Paradigm